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Mum's little lifesaver inspires Epilepsy Society fundraiser

By Western Gazette - Yeovil  |  Posted: September 08, 2012

Kirsty Swain with her son Connor, 6. Kirsty has grand mal epilepsy and Connor is her little hero who helps when she has a seizure

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A lifesaving youngster from Ilminster has inspired his epileptic mum to hold a fundraising event.

Connor Swain, 6, knows exactly what to do when his mum, Kirsty, has a seizure and has been looking after her since he was just two.

Mrs Swain, 32, was diagnosed with grand mal epilepsy when she was 17. She takes 14 tablets a day and said battling the disease can be a struggle.

She said: “Connor is truly a star and a lifesaver to me. I started telling him about my condition when he was two years old.

“By the time he was three he knew what medication I have to take day and night and how to use my phone to call for help if I was on my own with him and had a fit.

“The first time he had to call for help and look after me he was four years old. I woke up after collapsing in my hallway to find that I had a pillow under my head, a blanket over me, a cup of water next to me and he was sat stroking my face with one hand while playing with a train with the other.

“He told me that he had phoned nanny – my mum – and she was on her way over. Mum later told me that he was completely unfazed and calmly told her what had happened and was not in the least worried.

“He has had to do this on a number of occasions since and each time does exactly the right thing. I’m so proud of him and am very lucky to have him.”

Mrs Swain, is married to Darren and the family lives at Lower Meadow.

She said: “Connor does not worry at all and because I can’t drive he said he wants to be a train driver so he can ferry me around.”

Mrs Swain is organising a bingo event at Misterton Village Hall in aid of the Epilepsy Society on Monday.

She said: “It is a fantastic charity which helps raise awareness of the condition, continues to research the illness and possible cures, and helps support those who, like me, suffer from epilepsy and the families to help them cope.

“Amazingly, one in 131 people in the UK suffer from the illness, so it is a lot more common than people think. This is why I want to help raise awareness and much-needed funds to help this charity help us.

“I am lucky to have a very supportive family and friends. I cannot begin to imagine how people who suffer from the illness but don’t have help and support from those around them cope.”

Doors for the charity event open 6.45pm with eyes down at 7.30pm.

Connor is trying to organise a guess the name of the teddy stall on the night.

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